The Brain Tumour Charity Donation
The Addie Brady Foundation aims to support much needed research into high grade paediatric brain tumours with the hope of finding a cure and better treatment for childhood brain cancer.
In addition, it supports further study, awareness and support for families with Li Fraumeni Syndrome. (LFS)
Addie was our inspiration and we are determined for her strength and bravery to be an inspiration for all.
Addie was a young girl, carefree, with a zest for life.
In 2011, when Addie was 9, her life and ours changed forever when she was diagnosed with a rare form of bone cancer, spindle cell sarcoma. Surgery removed Addie's tibia bone, which was replaced with titanium metal and she spent several months in hospital having chemotherapy. Addie recovered and she returned to a relatively normal life.
However, five years later in September 2016, following a family party, Addie got up and was unable to speak and she appeared to be in a trance-like state. She was rushed by ambulance into a nearby hospital. During the journey, she experienced several seizures - it was terrifying and we did not anticipate what was to come.
Addie was stabilised but scans revealed a mass on her brain. Genetic testing revealed Addie had a mutation of the TP53 gene and she was diagnosed with Li-Fraumeni Syndrome (LFS).
The disease was brutal and took its toll, eventually taking her mobility, sight and mind. Addie died at home on 1st February this year. She was just 16 years old.
Addie was beautiful, loving and funny. She died as she had lived - complaining little, never acting as a victim and trying to see the positive in life. In her short life, she experienced lots and touched the hearts of everyone she met.